“Familial arrhythmia” is an umbrella term covering a wide variety of electrical diseases of the heart. These diseases which give rise to abnormal heart rhythms can in some cases become life threatening. 

This website, is intended for use by both patients and clinicians, to allow everyone involved in the care of someone with familial arrhythmias the opportunity to access relevant, high quality information about these conditions at their time of need. 

The Familial Arrhythmia Network of Scotland (FANS) was formed to bring together the expertise of a variety of clinicians from all over the country, who will work together with patient representatives and other healthcare professionals to streamline standards of care in Scotland, ensuring best clinical practice is achieved for all.

Report on the Gengage Public Event, Tuesday 3 April 2012

Edinburgh, Glasgow & Aberdeen

FANS co-hosted a very successful public engagement event with the British Heart Foundation & the Gengage network - "Preventing Sudden Cardiac Death Among the Young". The event was fully attended by members of the public and those with a professional interest in the issues surrounding sudden cardiac death (SCD).

Presentations on a variety of subjects including pathology, legal issues, genetics and screening were delivered. There was also moving personal testimony from a speaker whose family has been profoundly affected by an inherited cardiac condition.

There was also an opportunity for delegates to vote on issues such as screening and how well the legal system and NHS manages families who are affected by these devastating conditions. A full report of the event is to be drawn up and a further meeting will take place at the Scottish Parliament on the 6 June, hosted by John Swinney MSP and Johann Lamont MSP.

BACK COPIES OF THE QUARTERLY NEWSLETTER:

Issue 1: Special Network Launch Edition

Issue 2: April 2010

Issue 3: July 2010

Issue 4: October 2010

Issus 5: January 2011

 

FANS is now on Facebook! Click here to drop by and say 'hello'!

 

We are keen to see this website grow and develop; if there is anything you would like to see included here, or if there are any upcoming events you think would be helpful to other patients and /or clinicians, please get in touch via our Contact Us page.